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Digital Doppelgängers and Lifespan Extension: What Matters? Am. J. Bioethics (IF 17.0) Pub Date : 2024-11-14 Samuel Iglesias,Brian D Earp,Cristina Voinea,Sebastian Porsdam Mann,Anda Zahiu,Nancy S Jecker,Julian Savulescu
There is an ongoing debate about the ethics of research on lifespan extension: roughly, using medical technologies to extend biological human lives beyond the current "natural" limit of about 120 years. At the same time, there is an exploding interest in the use of artificial intelligence (AI) to create "digital twins" of persons, for example by fine-tuning large language models on data specific to
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Enabling Demonstrated Consent for Biobanking with Blockchain and Generative AI. Am. J. Bioethics (IF 17.0) Pub Date : 2024-11-05 Caspar Barnes,Mateo Riobo Aboy,Timo Minssen,Jemima Winifred Allen,Brian D Earp,Julian Savulescu,Sebastian Porsdam Mann
Participation in research is supposed to be voluntary and informed. Yet it is difficult to ensure people are adequately informed about the potential uses of their biological materials when they donate samples for future research. We propose a novel consent framework which we call "demonstrated consent" that leverages blockchain technology and generative AI to address this problem. In a demonstrated
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Allocation of Treatment Slots in Elective Mental Health Care—Are Waiting Lists the Ethically Most Appropriate Option? Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-24 Thomas Haustein, Ralf J. Jox
Waiting lists are a standard approach to managing excess demand in elective health care. While waiting times are an important policy issue, the ethical validity of the first come, first served (FCF...
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Errors, Omissions, and Pediatric Gender Medicine. Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-22 Moti Gorin,Jilles Smids
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Letter to the Editor Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-21 Robert Baker
Published in The American Journal of Bioethics (Ahead of Print, 2024)
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The Ethical Standard for End-of-Life Decisions for Unrepresented Patients Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-21 Matthew Shea
There has been increasing awareness of the medical and moral challenges in the care of unrepresented patients: those who cannot make their own medical decisions, do not have any surrogate decision ...
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Is It Ever OK to Reclassify Someone Out of Their Birth-Observed Sex Without Personal Consent? How Do We Manage Competing Methods of Classifying Sex? Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Morgan Carpenter
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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In Praise of Logical Inconsistency: World Athletics and the Evidence Bar of the “Reasonable Person in Good Faith” Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Silvia Camporesi, Sarah Teetzel
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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The Elite Sport Classification System Needs Improvement, Not Replacement Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Sigmund Loland
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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Inclusivity as Fairness Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Michael R. Ulrich, Arpita Khanna
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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Operationalizing Fairness Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Taryn Knox
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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Medical Interpretation Services: Challenges for LEP Communities Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Mariam Habhab, Michelle T. Pham
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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Integrating Intersectionality: Legal Status, Health Disparities, and LEP Populations Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Brian Tuohy, Emilie Sienko, Caitlyn Brenner, Elyse Gadra, Patrick Hernandez, Caitlyn Martin
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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Patients with Limited English Proficiency: Legal Mandates for Language Assistance Services Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Thaddeus Mason Pope
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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Federalism and Infrastructural Responsibility Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Tiffany Bystra, Jacob Moses
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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When Worlds Collide: The Problem of Health Inequities and Anti-Immigrant Politics Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Mark Kuczewski
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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Why It Could Be Ethical to Return to Biological Categories in Sport: Values-Based Rules Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Julian Savulescu
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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Beyond Policing Bodies: A Broader Conception of Fairness in Women’s Sports Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Lorenah E. Vásquez, Miriam Rich, Lisa Campo-Engelstein
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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Categorically Complicated Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Pam R. Sailors, Charlene Weaving
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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What Is Considered “Fair” Depends on the Purposes of Elite Sports Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Anna C. F. Lewis, Sarah Polcz
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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Evaluating Fairness in Sports: Beyond Testosterone Suppression Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Shreeya Moharir, Benjamin D. Schanker
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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Beyond Suppressing Testosterone: Overlooked Considerations Impacting Female Athletic Performance Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Hannah Carpenter, Georgia Loutrianakis, Johnna Wellesley
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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Ideal Fairness in Sport is Impossible Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Thomas S. Petersen, Sebastian J. Holmen, Jesper Ryberg
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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Bridging Ethics and Evidence: Language as a Critical Determinant of Health Equity Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Vishala Mishra, Damián E. Blasi, Joseph P. Dexter
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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Role of Terminology for Linguistic Preferences in Clinical and Public Health Communication Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Maria Cielito Robles, Emily Rodriguez, Theresa Williamson
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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Language, Stigma, and Neuropsychiatry in Limited English Proficiency Populations Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Craig W. McFarland, Julia M. Pace
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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The Bilingual Patient’s Dilemma: Same Question, Different Answer Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Michał Białek
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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We Need a Framework – But Should the Focus Be Broader? Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Kathleen Prokopovich, Lyn Phillipson, Annette Braunack-Mayer
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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How Does the Categorical System Account for Socioeconomic Background and Embodied Advantage? A Policy Development Dialogue Am. J. Bioethics (IF 17.0) Pub Date : 2024-10-14 Francisco Javier López Frías, Cesar R. Torres
Published in The American Journal of Bioethics (Vol. 24, No. 11, 2024)
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Bioethics, Equity, and Inclusion: How Do We Not Add to the Minority Tax? Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Keisha Ray
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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Using Health Justice to Achieve Racial Equity, Diversity, and Inclusion in Bioethics Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Ruqaiijah Yearby
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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Race Illiteracy as a Barrier to Antiracist Reform in Healthcare and Bioethics Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Abbas Rattani
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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REDI in Practice: A Need to Expand Our Knowledge Pool Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Kimberly Vargas Barreto
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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Adaptive Machine Learning as Research: Does the Cure Fit the Disease? Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Matthew DeCamp, David Kao
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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A Bioethics Assessment of Continuous Learning in Medicine and AI Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Rosamond Rhodes, Bruce Darrow, Daniel Moros, Henry Sacks, Gary Ostertag
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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Prudently Evaluating Medical Adaptive Machine Learning Systems Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Andreas Kuersten
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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Disclosing Interim Results to Parents Offered Enrollment in a Fetal Intervention Trial Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Andrew D. Ray, Liza Dawson, Benjamin S. Wilfond, Liza-Marie Johnson
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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Addressing Discrimination and Epistemic Injustices in Bioethics and Medicine Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Robert Baker
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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Beyond the Goodness of REDI and Racism’s Evil: On the Colonial Power of Bioethics Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Jessica Kolopenuk, Rita Kaur Dhamoon
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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REDI in Bioethics Cannot Be Achieved Without the Promotion of Anti-Ableism Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Kevin Todd Mintz, Maya Sabatello
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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REDI, Set, Caution Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Elysa Koppelman-White, Dean McKay, Richard J. McNally
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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Challenging the Centrality of Anti-Racism in Bioethics Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Joel Janhonen, Heikki Saxén
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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Anti-Racism in Clinical Ethics Fellowships: Rising to the Occasion Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Ryan Dougherty, Fahmida Hossain, Debjani Mukherjee
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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Adaptive Machine Learning Systems in Medicine – More Learner, Less Machine Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Anthony P. Weiss
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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Adaptive Medical Machine Learning Models Should Not Be Classified as Perpetual Research, but Do Require New Regulatory Solutions Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Yves Saint James Aquino, Stacy Carter
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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Beyond Consent: The MAMLS in the Room Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Jimin Rhim, Hortense Gallois, Vardit Ravitsky, Jean-Christophe Bélisle-Pipon
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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Discerning the Nature of MAMLS: Research, Quality Improvement, or Both? Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Charles Binkley, Rohan Meda, Joel de Lara
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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The Epistemological Nuances of Interpreting Adaptive Machine Learning Systems Through the Lens of Surgical Innovation Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Ian Stevens
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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Achieving Live Birth is Not an Endpoint but a Steppingstone Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Lainie Friedman Ross, Amy Gallo, D. Micah Hester
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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The Role of Perinatal Palliative Care to Support Parental Decision-Making about Clinical Research for Seriously Ill Children in the Neonatal Period Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Sabrina F. Derrington
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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The Need for an Evolving Informed Consent Process in a Fetal Therapy Trial Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Meredith A. Atkinson, Erika Ezumba, Jena L. Miller
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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Patient Consent and The Right to Notice and Explanation of AI Systems Used in Health Care Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-17 Meghan E. Hurley, Benjamin H. Lang, Kristin Marie Kostick-Quenet, Jared N. Smith, Jennifer Blumenthal-Barby
Given the need for enforceable guardrails for artificial intelligence (AI) that protect the public and allow for innovation, the U.S. Government recently issued a Blueprint for an AI Bill of Rights...
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Some Extensions of the Loop: A Response to the Comments on Machine Learning-Driven Decision Aids Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-17 Sabine Salloch, Andreas Eriksen
Published in The American Journal of Bioethics (Ahead of Print, 2024)
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Adaptive Machine Learning in Medicine: Not Human Subjects Research, Not Research at All Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Haavi Morreim
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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Doing What We Do Well: How Bioethicists Can Assist in Promoting Racial Justice Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Mark Kuczewski
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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Machine Learning-Generated Clinical Data as Collateral Research: A Global Neuroethical Analysis Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Michael O. S. Afolabi, Stephen Sodeke
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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Thinking Through How Race, Disability, and Gender Work Together Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Rosemarie Garland-Thomson, Desiree Valentine
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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Using Activism to Combat Systemic Racism in Bioethics and Healthcare Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Denise Angela Miller, Ryan Essex
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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Centering More than Trauma Experiences: Reflections from Launching a Graduate Course on Bioethics & Racial Justice in Canada Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Claudia Barned
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)
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Whether Designated as Research or Not, Who Resolves Ethical Considerations Emerging with Healthcare AI? Am. J. Bioethics (IF 17.0) Pub Date : 2024-09-16 Danton Char
Published in The American Journal of Bioethics (Vol. 24, No. 10, 2024)