Crawford, Gillian - University of Southampton

个人简介

Gillian completed her general nurse training at Guy’s hospital and worked for 8 years in medical oncology/haematology. She moved into Cancer Genetics in 1999 and worked as a senior genetic nurse specialist in Oxford. In 2001 she moved to Southampton to a joint NHS/University post as a principal genetic counsellor/research nurse working as part of the CRUK cancer centre. The role involved being the local co-ordinator for a range of national and international research studies into inherited cancers including chemoprevention, screening, epidemiology and DNA based projects. Southampton was consistently one of the top three recruiting centres in the country for these studies. At the same time she began to develop her own research interests. Initially she designed a project looking at the experience of living with von Hippel Lindau disease which resulted in a novel patient own held record scheme. She collaborated in qualitative research led by PIs at Southampton and Edinburgh exploring the nature of the boundary between research and clinical practice in the field of cancer genetics. She very much enjoyed the active combination of clinical practice and research during this period.

研究领域

Gillian’s current research explores the ethical and practical issues around consent and disclosure practices where clinically relevant findings are discovered incidentally from genetic tests. This research was funded by NIHR as a Clinical Doctoral Fellowship and now as a Post-Doctoral Fellowship. The research project employs a mixed methods design with an initial qualitative phase to establish current practice, views and experiences with both health care professionals and families followed by a quantitative phase ascertaining the views of a large number of health care professionals involved in ordering such tests. Its aim is to gain an ethical and empirical insight into this topical and important issue to guide future policy and practice.

近期论文

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Management of incidental findings in clinical genomic sequencing studies - Dheensa, Sandi, Shkedi-Rafid, Shiri, Crawford, Gillian, Bertier, Gabrielle, Schonstein, Lisa and Lucassen, Anneke Published:2016Publication:eLSPage Range:1-7doi:10.1002/9780470015902.a0025838 Health-care professionals' responsibility to patients' relatives in genetic medicine: a systematic review and synthesis of empirical research - Dheensa, Sandi, Fenwick, Angela, Shkedi-Rafid, Shiri, Crawford, Gillian and Lucassen, Anneke Published:2015Publication:Genetics in MedicinePage Range:1-12doi:10.1038/gim.2015.72PMID:26110233 Rescue obligations and collective approaches: complexities in genomics - Fenwick, Angela, Dheensa, Sandi, Crawford, Gillian, Shkedi-Rafid, Shiri and Lucassen, Anneke Published:2015Publication:The American Journal of BioethicsVolume:15, (2)Page Range:23-25doi:10.1080/15265161.2014.990763PMID:25674952 Defining and managing incidental findings in genetic and genomic practice - Shkedi-Rafid, Shiri, Dheensa, Sandi, Crawford, Gillian, Fenwick, Angela and Lucassen, Anneke Published:2014Publication:Journal of Medical Geneticsdoi:10.1136/jmedgenet-2014-102435PMID:25228303