ObjectiveThe purpose of this study was to explore individuals' beliefs, values, and experiences surrounding stillbirth evaluation decisions.DesignQualitative research.SettingUniversity of Utah Health.PopulationParents who experienced a stillbirth in the past 5 years (n = 19) were interviewed about their experiences and decision to consent to or decline stillbirth evaluations, such as autopsy, placental histopathology, or genetic testing.MethodsQualitative content analysis.Main Outcome MeasuresBarriers and facilitators to parentsstillbirth postmortem decision‐making.ResultsParticipants communicated several facilitators and barriers that contributed to their stillbirth evaluation decision. Reasons for consenting to evaluations were belief in science, background in medicine, altruism, to inform future pregnancies, thinking about preventing another stillbirth, and how patients viewed the care of their stillborn by the medical team. Reasons for declining evaluations were receiving a diagnosis prior to being offered a postmortem evaluation, intent to avoid causing further harm to the baby, interest to spend more time with their baby, and cost of the evaluation.ConclusionStillbirth is one of the most difficult experiences of a parent. Diagnostic and emotional barriers create further challenges to decision‐making for stillbirth postmortem evaluations. Parents often rely on inadequate information and personal values and beliefs during this time‐sensitive decision process. Decision support for stillbirth evaluations and training for medical providers could benefit parents, may increase stillbirth evaluation uptake, and potentially prevent decisional regret.FundingResearch reported in this publication was supported by the Utah Centre for Excellence in ELSI Research (UCEER).

中文翻译：

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导致采用死产评估的因素：定性分析


目的本研究的目的是探讨个人围绕死产评估决策的信念、价值观和经历。设计定性研究。地点犹他大学健康中心人口对过去 5 年内经历过死产 （n = 19） 的父母进行了访谈，了解他们的经历以及同意或拒绝死产评估（如尸检、胎盘组织病理学或基因检测）的决定。方法定性内容分析。主要结局指标父母死产死后决策的障碍和促进因素。结果参与者传达了导致他们死产评估决定的几个促进因素和障碍。同意评估的原因是对科学的信仰、医学背景、利他主义、为未来的怀孕提供信息、考虑防止再次死产以及患者如何看待医疗团队对死产的护理。评估拒绝的原因是在接受尸检评估之前得到诊断、意图避免对婴儿造成进一步伤害、有兴趣花更多时间陪伴婴儿以及评估费用。结论死产是父母最困难的经历之一。诊断和情感障碍给死产尸检评估的决策带来了进一步的挑战。在这个时间敏感的决策过程中，父母经常依赖不充分的信息以及个人价值观和信仰。对死产评估的决策支持和对医疗服务提供者的培训可能使父母受益，可能会增加死产评估的接受率，并可能防止决策后悔。Funding本出版物中报道的研究得到了犹他州 ELSI 研究卓越中心 （UCEER） 的支持。