This study explores the perceived effects of a home-based end-of-life social care program in palliative care in Spain, from the perspective of caregivers. A qualitative study using semi-structured interviews with 75 caregivers from the INTecum project. Non-probability purposive sampling was used to recruit the study participants. The analytical process followed a thematic analysis. Caregivers expressed several factors that were influential in reducing stress and anxiety. Knowing that they can count on a case manager in a situation of need was highlighted as very positive. Another important factor that helped to create a positive sense of security was the speed of the project in offering its services. One of the problems that arose was the lack of support in situations where a transition between home and hospital care was required. Aspects such as listening and kindness, and affection, are highlighted in a very positive way. In addition to the final desires, caregivers also recognized that it was important for professionals to take their relative's wishes into account when making decisions. Incorporating a psychosocial component in palliative care for both patients and family caregivers is recognized and such actions are recommended, as well the strengthening of social and health care coordination.

中文翻译：

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从护理人员的角度来看，以家庭为基础的社会护理计划对西班牙姑息治疗的影响。


本研究从护理人员的角度探讨了西班牙以家庭为基础的临终社会护理计划对姑息治疗中的感知影响。一项定性研究，使用对来自 INTecum 项目的 75 名护理人员的半结构化访谈。采用非概率目的抽样来招募研究参与者。分析过程遵循主题分析。照顾者表达了几个影响减轻压力和焦虑的因素。知道他们可以在需要的情况下依靠个案经理，这被强调为非常积极。有助于营造积极安全感的另一个重要因素是项目提供服务的速度。出现的问题之一是在需要在家庭和医院护理之间过渡的情况下缺乏支持。倾听、善良和感情等方面以非常积极的方式得到强调。除了最终的愿望之外，护理人员还认识到，专业人士在做决定时考虑亲属的意愿很重要。在患者和家庭护理人员的姑息治疗中纳入社会心理成分是公认的，建议采取此类行动，并加强社会和医疗保健协调。