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National Fatality Review Case Reporting System: Twenty Years of Data Collection.
Pediatrics ( IF 6.2 ) Pub Date : 2024-11-01 , DOI: 10.1542/peds.2024-067043c
Abigael Collier,Heather Dykstra,Esther Shaw,Rosemary Fournier,Patricia Schnitzer

The National Fatality Review Case Reporting System (NFR-CRS) is a web-based data collection tool for child death review and fetal and infant mortality review teams. The NFR-CRS captures information from the multidisciplinary review, including the social and community risk factors that may have impacted the death. The NFR-CRS is a nimble data system that has evolved throughout the past 20 years. The most recent enhancements include a life stressors section focused on collecting contextual information such as racism and poverty, revised cause of death sections to better align data collected with risk factors identified in the research, and enhanced data visualizations. The NFR-CRS has improved data quality since the launch of a data quality initiative in 2015. As a result of the data quality initiative, the completeness, consistency, accuracy, and timeliness of the NFR-CRS data have improved. Limitations for the NFR-CRS include the fact that data entered are not population-based, data fields have evolved over time, and there are high percentages of missing and unknown data. Despite its limitations, the NFR-CRS remains a valuable research tool, especially when paired with other data sources.

中文翻译:


国家死亡审查病例报告系统:二十年的数据收集。



国家死亡审查病例报告系统 (NFR-CRS) 是一种基于网络的数据收集工具,适用于儿童死亡审查和胎儿及婴儿死亡率审查小组。NFR-CRS 从多学科审查中捕获信息,包括可能影响死亡的社会和社区风险因素。NFR-CRS 是一个灵活的数据系统,在过去 20 年中不断发展。最近的增强功能包括专注于收集种族主义和贫困等背景信息的生活压力源部分,修订后的死因部分以更好地将收集的数据与研究中确定的风险因素保持一致,以及增强的数据可视化。自 2015 年启动数据质量计划以来,NFR-CRS 提高了数据质量。由于数据质量计划,NFR-CRS 数据的完整性、一致性、准确性和及时性得到了提高。NFR-CRS 的局限性包括:输入的数据不是基于群体的,数据字段随着时间的推移而演变,并且缺失和未知数据的百分比很高。尽管存在局限性,但 NFR-CRS 仍然是一个有价值的研究工具,尤其是在与其他数据源配对时。
更新日期:2024-11-01
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