Clinical research advances medical knowledge and improves healthcare outcomes. However, disparities in research participation hinder progress. The Unmet Research Needs in Spondyloarthritis Conference IV highlighted critical insights and strategies to enhance equity in clinical research. Talks focused on engaging underrepresented communities and addressing disparities in rheumatic diseases, particularly spondyloarthritis (SpA), to ensure research results are generalizable and inclusive. Disparities in SpA management, such as greater back pain severity among Black and Hispanic Americans and sex-based differences in pain management, emphasize the need for equitable research. Dr. Elizabeth Ferucci discussed the racial disparities in rheumatologic care, highlighting the importance of early access to rheumatologists and culturally informed primary care to improve outcomes. Dr. Hani El-Gabalawy's talk on engaging Indigenous communities stressed the importance of community consent and reciprocal benefits. Dr. Sarfaraz Hasni's presentation on mitigating disparities in research participation underscored the need for inclusive practices and strategies to promote diverse representation. Finally, Dr. Edith Williams emphasized institutional approaches to fostering equity, including diverse recruitment practices and institutional review board alignment with diversity priorities. Strategies to enhance equity in clinical research include community engagement, addressing logistical barriers to participation, and ensuring diverse research teams. These approaches can dismantle barriers for underrepresented communities, making research more accessible and reflective of the broader population. The SpA research community must commit to creating structures that foster inclusivity, ensuring medical advancements benefit all populations, especially historically underrepresented groups. The principles and strategies proposed serve as a roadmap for achieving equity in SpA research.

中文翻译：

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提高临床研究的公平性：脊柱关节炎的多方面建议。


临床研究可推进医学知识并改善医疗保健结果。然而，研究参与方面的差异阻碍了进展。脊柱关节炎未满足的研究需求会议 IV 强调了提高临床研究公平性的关键见解和策略。讲座的重点是让代表性不足的社区参与进来，并解决风湿性疾病，特别是脊柱关节炎 （SpA） 的差异，以确保研究结果具有可推广性和包容性。SpA 管理的差异，例如黑人和西班牙裔美国人的背痛严重程度更高以及疼痛管理中基于性别的差异，强调了公平研究的必要性。Elizabeth Ferucci 博士讨论了风湿病护理中的种族差异，强调了及早获得风湿病学家和文化知情的初级保健对于改善结果的重要性。Hani El-Gabalawy 博士关于让原住民社区参与的演讲强调了社区同意和互惠互利的重要性。Sarfaraz Hasni 博士关于减少研究参与差异的演讲强调了包容性实践和策略的必要性，以促进多元化的代表性。最后，Edith Williams 博士强调了促进公平的机构方法，包括多样化的招聘实践和机构审查委员会与多元化优先事项的一致性。加强临床研究公平性的策略包括社区参与、解决参与的后勤障碍以及确保研究团队的多样性。这些方法可以消除代表性不足社区的障碍，使研究更容易获得并反映更广泛的人群。 SpA 研究界必须致力于创建促进包容性的结构，确保医学进步惠及所有人群，尤其是历史上代表性不足的群体。提出的原则和策略可作为在 SpA 研究中实现公平性的路线图。