Background Underrepresentation of care home residents in research has resulted in a poorer evidence base for health care in care homes. Fewer opportunities to take part in research, as well as assumptions made by others about their interest or wishes, creates challenges for residents’ inclusion in research. Early discussions about research preferences and wishes may be beneficial. This qualitative study aimed to explore stakeholders’ views about how care home residents can be supported to communicate their wishes about research participation. Method Semi-structured interviews were conducted with 25 stakeholders: care home residents (n = 5), relatives (n = 5), care home staff (n = 5), other health and social care professionals who work with care homes (n = 6), and care home researchers (n = 4). Interviews were conducted virtually or face-to-face and data were analysed using thematic analysis. Results Views about resident research participation, the barriers and facilitators to their inclusion, and the role of advance research planning were iteratively organized into three themes: (i) We’re of no value to research; (ii) Research is difficult; and (iii) Advance research planning: good in theory, challenging in practice. Subthemes were also identified, and findings were discussed with a Patient and Public Involvement group for additional reflections. Conclusions Stakeholders identified a number of barriers to including care home residents in research, including knowing their preferences about research. The development of interventions to facilitate communication that can be adapted to individuals’ requirements are needed to support discussions and decision-making with care home residents about wishes and preferences for future research participation.

中文翻译：

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“研究在其他环境中进行了很多，那么为什么不在这里呢？”利益相关者对护理院居民研究参与预先规划的看法的定性访谈研究


背景 护理院居民在研究中代表性不足导致护理院医疗保健的证据基础较差。参与研究的机会较少，以及其他人对他们的兴趣或愿望所做的假设，给居民参与研究带来了挑战。尽早讨论研究偏好和愿望可能是有益的。这项定性研究旨在探讨利益相关者对如何支持护理院居民传达他们对参与研究的愿望的看法。方法对 25 名利益相关者进行了半结构化访谈：护理院居民 （n = 5）、亲属 （n = 5）、护理院工作人员 （n = 5）、与护理院合作的其他健康和社会护理专业人员 （n = 6） 和护理院研究人员 （n = 4）。访谈以虚拟或面对面方式进行，并使用主题分析对数据进行分析。结果 关于住院医师研究参与、纳入研究的障碍和促进因素以及预先研究计划的作用的观点被迭代地分为三个主题：（i） 我们对研究没有价值;（ii） 研究困难;（iii） 提前研究规划：理论上良好，实践中具有挑战性。还确定了子主题，并与患者和公众参与小组讨论了研究结果，以进行进一步的思考。结论 利益相关者确定了将护理院居民纳入研究的许多障碍，包括了解他们对研究的偏好。需要制定干预措施以促进可以适应个人需求的沟通，以支持与护理院居民就未来参与研究的愿望和偏好进行讨论和决策。