semi-structured interviews with 12 living kidney donors. The survey was developed based on themes identified in the semi-structured interviews, guidance from the research and clinical teams, and feedback from pilot testing with six previous donors. Results: Most (73%) respondents received follow-up after the first donation year from a primary care provider, and 70% reported annual follow-up visits including blood and urine tests. Most (71%) received a follow-up reminder from their transplant center, and follow-up was higher (86% versus 68%) among those receiving reminders. Donors wanted specialist involvement if new health or kidney-related events occurred. Most (70%) were satisfied with their follow-up, and 66% endorsed annual life-long follow-up. Donors wanted more information about lifestyle and living donor outcomes and wanted to contribute to research to increase understanding of long-term donor health outcomes. Conclusions: Donors wanted annual lifelong follow-up including clinical assessment and laboratory tests and more information about their post-donation health. A transplant center led, primary care provider administered model of long-term follow-up may best meet the care and information needs of most donors. Copyright © 2024 by the American Society of Nephrology...

中文翻译：

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对活体肾脏捐献者长期随访的看法


对 12 名活体肾脏捐献者的半结构化访谈。该调查是根据半结构化访谈中确定的主题、研究和临床团队的指导以及与六位前捐助者进行试点测试的反馈而制定的。结果： 大多数 （73%） 受访者在第一年捐赠后接受了初级保健提供者的随访，70% 的受访者报告了年度随访，包括血液和尿液检查。大多数 （71%） 收到了移植中心的随访提醒，接受提醒的患者的随访率更高（86% 对 68%）。如果发生新的健康或肾脏相关事件，捐献者希望专家参与。大多数 （70%） 对他们的随访感到满意，66% 的人支持每年进行终身随访。捐献者希望了解有关生活方式和活体捐献者结果的更多信息，并希望为研究做出贡献，以增加对长期捐献者健康结果的理解。结论： 捐献者希望每年进行一次终身随访，包括临床评估和实验室检查以及有关其捐献后健康状况的更多信息。移植中心主导、初级保健提供者管理的长期随访模式可能最能满足大多数供体的护理和信息需求。美国肾脏病学会版权所有 © 2024...