Cancer and its care create substantial financial, time, and administrative burdens both for patients and their loved ones. While cancer-related financial burdens have been well documented in the past decade, time and administrative burdens of cancer care have received substantially less attention. We define time burdens as the burden patients and caregivers experience due to the time needed to complete cancer-related treatment and tasks that take away from other life responsibilities. Relatedly, we conceptualize administrative burdens as those burdens patients and caregivers experience due to cancer-related, resource-consuming bureaucratic and logistical tasks. Finally, financial hardship can be conceptualized as problems patients experience related to the cost of medical care. These burdens do not exist in isolation; time, administrative, and financial burdens intersect with and compound each other. Currently, we have limited evidence-based measures on the objective (e.g., scheduling time, transportation, wait time) and subjective (e.g., mental, emotional and physical stress) measures of time and administrative burden. We have even more limited evidence of the risk factors for and outcomes from increased time and administrative burdens, and how they differentially impact populations across social and demographic groups. In this commentary, we present a research agenda to map, measure, evaluate, and mitigate the time, administrative, and financial burdens of cancer and its care.

中文翻译：

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癌症诊断的交叉时间、管理和财务负担


癌症及其护理给患者及其亲人带来了巨大的财务、时间和管理负担。虽然在过去十年中与癌症相关的经济负担已得到充分记录，但癌症护理的时间和管理负担受到的关注要少得多。我们将时间负担定义为患者和照护者由于完成癌症相关治疗所需的时间以及剥夺其他生活责任的任务而承受的负担。与此相关，我们将行政负担概念化为患者和护理人员因癌症相关、消耗资源的官僚和后勤任务而经历的负担。最后，经济困难可以概念化为患者经历的与医疗费用相关的问题。这些负担不是孤立存在的;时间、行政和财务负担相互交织。目前，我们对时间和行政负担的客观 （例如，安排时间、交通、等待时间） 和主观 （例如，精神、情绪和身体压力） 测量的循证测量有限。关于时间和管理负担增加的风险因素和结果，以及它们如何不同地影响社会和人口群体的人群，我们掌握的证据更加有限。在本评论中，我们提出了一个研究议程，以绘制、测量、评估和减轻癌症及其护理的时间、管理和财务负担。