The aim of the creation of this cohort was to investigate patterns of health and health care utilisation before and during the COVID-19 pandemic, overall and in relation to specific diagnoses, among people with intellectual disabilities (ID) compared to the general population. People living in Skåne, the southernmost region of Sweden, on 1st of January 2014 with at least one diagnosis of ID (ICD-10 codes F70-F79) or Down syndrome (DS; Q90), or support and/or services according to the LSS act comprised the ID cohort (n = 14 716). People living in the same family and/or household as a person in the ID cohort constituted the ID family cohort (n = 31 688), and those remaining comprised the general population cohort (gPop; n = 1 226 955). Data has been collected for all three cohorts from several national and regional registers. These include registers for health care (2014–2021), deaths (2014–2021), COVID-19-related health care (vaccinations, intensive care, palliative care, 2020–2021). The prevalence of ID was 1.2%. In the ID cohort, 77.9% had at least one measure of support, 5.8% at least one Q90-diagnosis and 63.8% had at least one F7-diagnosis (26.9% mild (F70), 7.4% moderate (F71), 2.8% severe (F72), 1.4% profound (F73), and 25.4% other/unknown (F78/F79)). Compared to the gPop there were more people in the younger age groups in the ID cohort. At this point, no additional collection of data will be carried out. However, there is a possibility to add data from the registers to include years after 2021 or from additional registers. Future publications will explore relevant research questions and report key findings in relation to health among people with ID. Future results will be used to inform policy and practice on people with ID.

创建该队列的目的是调查 COVID-19 大流行之前和期间的健康和医疗保健利用模式，与普通人群相比，智障人士 （ID） 的整体和与特定诊断的关系。2014 年 1 月 1 日居住在瑞典最南端地区斯科讷 （Skåne） 的人，至少被诊断出患有 ID（ICD-10 代码 F70-F79）或唐氏综合症（DS;Q90） 或根据 LSS 法案的支持和/或服务组成了 ID 队列 （n = 14 716）。与 ID 队列中的人生活在同一个家庭和/或家庭中的人构成了 ID 家庭队列 （n = 31 688），剩下的人构成了一般人群队列 （gPop;n = 1 226 955）。已从几个国家和地区登记处收集了所有三个队列的数据。其中包括医疗保健登记册（2014-2021 年）、死亡人数（2014-2021 年）、与 COVID-19 相关的医疗保健（疫苗接种、重症监护、姑息治疗，2020-2021 年）。ID 的患病率为 1.2%。在 ID 队列中，77.9% 至少有一项支持措施，5.8% 至少有一项 Q90 诊断，63.8% 至少有一项 F7 诊断 （26.9% 轻度 （F70），7.4% 中度 （F71），2.8% 重度 （F72），1.4% 深度 （F73） 和 25.4% 其他/未知 （F78/F79））。与 gPop 相比，ID 队列中年轻群体的人数更多。此时，不会执行额外的数据收集。但是，可以从 registers 中添加数据以包括 2021 年之后的年份或其他 registers。未来的出版物将探讨相关的研究问题并报告与 ID 患者健康相关的主要发现。未来的结果将用于为 ID 患者的政策和实践提供信息。