OBJECTIVE This study aimed to describe menopause and treatment experiences of women with vasomotor symptoms due to menopause in the United States. METHODS A cross-sectional survey was administered to women 40-65 years of age recruited from PatientsLikeMe, a dedicated online platform for patients. RESULTS A total of 196 women (mean age 55.7 years; 81.2% White) completed the survey and were included in the analyses. The majority (87.2%) reported experiencing bothersome symptoms; 54.3% (100/184) had daytime hot flashes, and 59.2% (109/184) had nighttime sweats and hot flashes, up to 5 times per day on average. Mean postmenopause duration was 10.8 years. Although most (68.5%, 126/184) reported having vasomotor symptoms for less than 5 years, some (14.1%, 26/184) had symptoms for more than a decade. Only 35.2% (69/196) were treated for their symptoms; the most frequently reported prescription treatment was hormone therapy (58%; 40/69), which was administered for less than 3 years in most cases (67.5%, 27/40). Although women were generally satisfied with their interactions with healthcare providers, 23.0% reported inadequate support. Sleep, personal relationships, and physical, emotional, and mental well-being were the most affected by vasomotor symptoms. Healthcare professionals with training in women's health were the most valued resource for dealing with the symptoms associated with menopause. CONCLUSIONS Not all women with symptoms were treated. In those whose concerns were addressed by providers, a reluctance to pursue treatment was still observed. A need persists to ensure that this population has the resources and support needed to effectively manage symptoms.

中文翻译：

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来自 PatientsLikeMe 社区的患者体验和更年期血管舒缩症状管理调查。


目的 本研究旨在描述美国因更年期而出现血管舒缩症状的女性的更年期和治疗经历。方法 对从患者专用在线平台 PatientsLikeMe 招募的 40-65 岁女性进行了横断面调查。结果 共有 196 名女性 （平均年龄 55.7 岁;81.2% 为白人） 完成了调查并被纳入分析。大多数 （87.2%） 报告出现令人烦恼的症状;54.3% （100/184） 有白天潮热，59.2% （109/184） 有夜间出汗和潮热，平均每天最多 5 次。平均绝经后持续时间为 10.8 年。尽管大多数 （68.5%，126/184） 报告血管舒缩症状不到 5 年，但一些 （14.1%，26/184） 症状超过 10 年。只有 35.2% （69/196） 的症状得到治疗;最常报告的处方治疗是激素治疗 （58%;40/69），在大多数情况下给药时间少于 3 年 （67.5%，27/40）。尽管女性普遍对她们与医疗保健提供者的互动感到满意，但 23.0% 的女性表示支持不足。睡眠、人际关系以及身体、情感和心理健康受血管舒缩症状的影响最大。受过女性健康培训的医疗保健专业人员是处理与更年期相关的症状的最有价值的资源。结论 并非所有有症状的女性都接受了治疗。在那些由提供者解决担忧的人中，仍然观察到不愿意寻求治疗。确保这一人群拥有有效管理症状所需的资源和支持的需求仍然存在。