Measuring patient related outcomes helps to assess the effects of treatment on patients and can facilitate personalised care, say Ramzi Ajjan and colleagues In most consultations about long term conditions, healthcare professionals tend to focus on patients’ clinical outcomes or targets. Frequently missing from these discussions is how psychologically and physically challenging the day-to-day management of these conditions can be, as patients work to alleviate symptoms and reduce the risk of long term complications.1 In an era where patient management is focused on following guidelines and attaining treatment targets, the lived experience of the individual person can be forgotten. Patient related outcomes (PROs) could be a useful way to re-centre the individual and improve personalised care. PROs, with their specific focus on a person’s lived experience, are increasingly receiving attention in healthcare settings.2 They capture patients’ responses to the demands of self-management and its effects on other areas of their life—factors that can have considerable influence on a person adhering to treatment and achieving clinical targets. PROs are measured using specific, validated questionnaires, known as patient related outcome measures (PROMs). Unlike biometric data, a key advantage of PROMs is that information on patients’ physical and mental health status can be collected independently of healthcare professionals. The …

中文翻译：

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长期条件下的患者相关结果测量（PROM）——是时候将其纳入常规临床实践了吗？


Ramzi Ajjan 及其同事表示，衡量患者相关结果有助于评估治疗对患者的效果，并促进个性化护理。在大多数有关长期病症的咨询中，医疗保健专业人员往往关注患者的临床结果或目标。这些讨论中经常忽略的是，当患者努力缓解症状并降低长期并发症的风险时，这些病症的日常管理在心理和身体上可能会带来多大的挑战。1在患者管理的重点是以下方面的时代：指导方针和实现治疗目标时，个人的生活经历可能会被遗忘。患者相关结果 (PRO) 可能是重新定位个人并改善个性化护理的有用方法。 PRO 特别关注个人的生活经历，在医疗保健环境中越来越受到关注。2 它们捕捉患者对自我管理需求的反应及其对生活其他领域的影响，这些因素可能对自我管理产生重大影响。坚持治疗并实现临床目标的人。 PRO 使用特定的、经过验证的问卷进行测量，称为患者相关结果测量 (PROM)。与生物识别数据不同，PROM 的一个关键优势是可以独立于医疗保健专业人员收集有关患者身心健康状况的信息。这 …