Objective Sexual dysfunction is common in patients with inflammatory bowel disease (IBD). Data on IBD disease activity and IBD patients’ desire to seek specialist advice regarding sexual dysfunction are lacking. We aimed to identify sexual healthcare needs in patients with IBD. Design/method We conducted a cross-sectional survey of adult patients with IBD at a tertiary teaching hospital. Clinical disease activity was assessed using the Harvey-Bradshaw Index for patients with Crohn’s disease and the Patient-Simple Clinical Colitis Activity Index for patients with ulcerative colitis. Sexual health questions were derived from the validated IBD-Specific Female Sexual Dysfunction and IBD-Male Sexual Dysfunction Scales. Comparisons between those with inactive and active disease were made using Fisher’s exact test. Results 101 respondents completed the survey, of which 53 (52%) were female and 57 (56%) had Crohn’s disease. The median age was 38 (IQR 28–52). 34 respondents (34%) had active disease. Respondents with active Crohn’s disease trended towards having more significant sexual dysfunction than those in remission for all domains on the sexual dysfunction scale. 74% reported interest in accessing specialist advice regarding their sexual function while 20% have attempted to seek this advice. 36% would wish to be contacted by the IBD team if a sexual health service became available. Conclusions Negative impacts on sexual function were common in our cohort, particularly in the presence of active disease. Most patients with IBD are interested in obtaining advice regarding their sexual function. This is an unmet need among IBD services. Data are available on reasonable request.

中文翻译：

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性功能障碍在 IBD 中普遍存在，但服务不足：需要扩大专门的 IBD 护理


目的 性功能障碍在炎症性肠病（IBD）患者中很常见。缺乏关于 IBD 疾病活动性和 IBD 患者寻求有关性功能障碍专家建议的愿望的数据。我们的目的是确定 IBD 患者的性保健需求。设计/方法 我们对一家三级教学医院的成年 IBD 患者进行了横断面调查。使用哈维-布拉德肖指数（Harvey-Bradshaw Index）评估克罗恩病患者的临床疾病活动性，使用患者简单临床结肠炎活动性指数（Patient-Simple Clinical Colitis Activity Index）评估溃疡性结肠炎患者的临床疾病活动性。性健康问题源自经过验证的 IBD 特定女性性功能障碍和 IBD 男性性功能障碍量表。使用费舍尔精确检验对患有非活动性和活动性疾病的患者进行比较。结果 101 名受访者完成了调查，其中 53 名（52%）为女性，57 名（56%）患有克罗恩病。中位年龄为 38 岁（IQR 28-52）。 34 名受访者 (34%) 患有活动性疾病。在性功能障碍量表的所有领域，患有活动性克罗恩病的受访者往往比缓解期的受访者有更严重的性功能障碍。 74% 的人表示有兴趣获得有关其性功能的专家建议，而 20% 的人曾尝试寻求此建议。如果提供性健康服务，36% 的人希望 IBD 团队与他们联系。结论 对性功能的负面影响在我们的队列中很常见，特别是在存在活动性疾病的情况下。大多数 IBD 患者有兴趣获得有关其性功能的建议。这是 IBD 服务中未满足的需求。可根据合理要求提供数据。