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The lucidity in dementia experience: perspectives from family and professional caregivers
Age and Ageing ( IF 6.0 ) Pub Date : 2024-08-19 , DOI: 10.1093/ageing/afae174 Mildred Ramirez 1 , Jeanne A Teresi 2 , Stephanie Silver 1 , Paloma Gonzalez-Lopez 1 , Irena van Meer 1 , Ida Ghaemmaghamfarahani 1 , Gabriel Boratgis 1 , Davangere Devenand 3 , Jose A Luchsinger 4
Age and Ageing ( IF 6.0 ) Pub Date : 2024-08-19 , DOI: 10.1093/ageing/afae174 Mildred Ramirez 1 , Jeanne A Teresi 2 , Stephanie Silver 1 , Paloma Gonzalez-Lopez 1 , Irena van Meer 1 , Ida Ghaemmaghamfarahani 1 , Gabriel Boratgis 1 , Davangere Devenand 3 , Jose A Luchsinger 4
Affiliation
Background Family and professional caregivers of individuals with dementia often witness care-receiver’s lucidity events. Objective A qualitative data analysis was performed of documented family and professional caregivers’ experiences and their respective appraisals of lucidity events. Research Design and Methods Using a reduction method of selection, data from 10 in-home family caregivers and 20 professional caregivers to long-term care residents was content-coded and analysed. Framed by a priori research questions, a summative approach to qualitative content analysis guided the interpretation of findings. Results Eight of 10 family- and 15 of 20 staff caregivers gave an example of what they believed was a witnessed lucid event; 88% of family- and 40% of staff caregivers’ provided examples that appeared to fit the conceptual definition of lucidity. The emotional impact that the events had on both sets of caregivers was reported. Family caregivers’ characterization of lucidity events reflected appraisals of a puzzling occurrence while staff caregivers depicted elements associated with dementia, and lucidity descriptors. The enhanced verbal communication followed by the brief, unexpected quality of lucidity, were the main elements highlighted by both sets of caregivers in their description of lucidity to others. The variability and complexity of the lucidity phenomenon and the potential challenges it poses for both sets of caregivers were characterized. Commonalities and divergences across responses were highlighted. Discussion Findings validated previous studies’ results. The notions introduced by both types of caregivers were thought-provoking and borne practical, clinical, ethical, and assessment (measurement) applicability.
中文翻译:
痴呆经历的清醒性:来自家庭和专业护理人员的观点
背景 痴呆患者的家庭和专业护理人员经常目睹护理接受者的清醒事件。目的 对记录在案的家庭和专业护理人员的经历以及他们各自对清醒事件的评估进行定性数据分析。研究设计和方法 使用减少选择方法,对 10 名家庭护理人员和 20 名专业护理人员的数据进行内容编码和分析。在先验研究问题的框架下,定性内容分析的总结性方法指导了对结果的解释。结果 10 名家庭中有 8 名和 20 名工作人员护理人员中有 15 名给出了他们认为是目击清醒事件的例子;88% 的家庭护理人员和 40% 的工作人员护理人员提供了似乎符合清醒概念定义的例子。报告了这些事件对两组护理人员的情绪影响。家庭护理人员对清醒事件的描述反映了对令人费解的事件的评估,而工作人员护理人员则描述了与痴呆相关的元素和清醒描述符。增强的口头交流,以及简短、出乎意料的清醒品质,是两组照顾者在向他人描述清醒时强调的主要元素。描述了清醒现象的可变性和复杂性以及它对两组护理人员构成的潜在挑战。强调了回复之间的共同点和差异。讨论结果验证了先前研究的结果。这两种类型的护理人员引入的概念都发人深省,并且具有实用性、临床性、伦理性和评估(测量)适用性。
更新日期:2024-08-19
中文翻译:
痴呆经历的清醒性:来自家庭和专业护理人员的观点
背景 痴呆患者的家庭和专业护理人员经常目睹护理接受者的清醒事件。目的 对记录在案的家庭和专业护理人员的经历以及他们各自对清醒事件的评估进行定性数据分析。研究设计和方法 使用减少选择方法,对 10 名家庭护理人员和 20 名专业护理人员的数据进行内容编码和分析。在先验研究问题的框架下,定性内容分析的总结性方法指导了对结果的解释。结果 10 名家庭中有 8 名和 20 名工作人员护理人员中有 15 名给出了他们认为是目击清醒事件的例子;88% 的家庭护理人员和 40% 的工作人员护理人员提供了似乎符合清醒概念定义的例子。报告了这些事件对两组护理人员的情绪影响。家庭护理人员对清醒事件的描述反映了对令人费解的事件的评估,而工作人员护理人员则描述了与痴呆相关的元素和清醒描述符。增强的口头交流,以及简短、出乎意料的清醒品质,是两组照顾者在向他人描述清醒时强调的主要元素。描述了清醒现象的可变性和复杂性以及它对两组护理人员构成的潜在挑战。强调了回复之间的共同点和差异。讨论结果验证了先前研究的结果。这两种类型的护理人员引入的概念都发人深省,并且具有实用性、临床性、伦理性和评估(测量)适用性。