Advances in medical knowledge and treatments have made possible the survival of children with diseases that require lifelong care, and increasing numbers of families with children with medical complexity are presenting for health care. Owing to an increase in home-based care, the responsibility of complicated treatment regimens falls on parents and family caregivers. Based on studies and national survey, parents of children with medical complexity fare worse in mental health and family functioning. This review describes screening tools and research studies for family functioning and psychological health. These data also help in designing a family centered approach to the care of parents and caregivers to create a medical home and community support systems that integrate psychological and emotional interventions. Physician communication can be optimized by educational tools of brief intervention and community connections. [Pediatr Ann. 2024;53(3):e93-e98.].

中文翻译：

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患有医疗复杂性的儿童家庭的心理护理。


医学知识和治疗方法的进步使得患有需要终身护理的疾病的儿童得以生存，并且越来越多的有患有复杂疾病的儿童的家庭正在寻求医疗保健。由于家庭护理的增加，复杂的治疗方案的责任落在了父母和家庭护理人员身上。根据研究和全国调查，患有复杂疾病的儿童的父母在心理健康和家庭功能方面表现较差。这篇综述描述了家庭功能和心理健康的筛查工具和研究。这些数据还有助于设计以家庭为中心的父母和护理人员护理方法，以创建整合心理和情感干预的医疗之家和社区支持系统。医生的沟通可以通过简短干预和社区联系的教育工具来优化。 [小儿安。 2024；53(3)：e93-e98。]。