Living with peripartum cardiomyopathy: A statement from the Heart Failure Association and the Association of Cardiovascular Nursing and Allied Professions of the European Society of Cardiology,European Journal of Heart Failure

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Living with peripartum cardiomyopathy: A statement from the Heart Failure Association and the Association of Cardiovascular Nursing and Allied Professions of the European Society of Cardiology
European Journal of Heart Failure ( IF 16.9 ) Pub Date : 2024-08-08 , DOI: 10.1002/ejhf.3377
Karen Sliwa ₁ , Amina Rakisheva ₂ , Charle Viljoen ₁ , Tobias Pfeffer ₃ , Maggie Simpson ₄ , Alice M Jackson ₅ , Mark C Petrie ₅ , Peter van der Meer ₆ , Hasan Al Farhan ₇ , Silvana Jovanova ₈ , Amam Mbakwem ₉ , Gianfranco Sinagra ₁₀ , Emeline Van Craenenbroeck ₁₁ , Julian Hoevelmann _{1,

12} , Mark R Johnson _{13,

14} , Richard Mindham ₁₅ , Ovidiu Chioncel ₁₆ , Kai G Kahl ₁₇ , Giuseppe Rosano ₁₈ , Carsten Tschöpe ₁₉ , Alexandre Mebazaa ₂₀ , Petar Seferovic ₂₁ , Johann Bauersachs ₃

Affiliation

Cape Heart Institute, Department of Cardiology and Medicine, University of Cape Town, Cape Town, South Africa.
Scientific Institution of Cardiology and Internal Medicine Almaty, Almaty, Kazakhstan.
Department of Cardiology and Angiology, Hannover Medical School, Hannover, Germany.
Golden Jubilee National Hospital, Clydebank, UK.
Department of Cardiology, Institute of Cardiovascular and Medical Sciences, Glasgow University, Glasgow, UK.
Department of Cardiology, University Medical Center Groningen, Groningen, The Netherlands.
Iraqi Board for Medical Specialization, Scientific Council of Cardiology, College of Medicine, University of Baghdad, Baghdad Heart Centre, Iraq.
Department of Cardiology, University Clinic of Cardiology, University Cyril and Methodius, Skopje, North Macedonia.
Department of Medicine, College of Medicine, University of Lagos, Lagos, Nigeria.
Cardiovascular Department, Azienda Sanitaria Universitaria Giuliano Isontina (ASUGI), University of Trieste, Trieste, Italy.
Department of Cardiology, Antwerp University Hospital (UZA), Edegem, Belgium.
Department of Internal Medicine III, Saarland University Hospital, Homburg (Saar), Germany.
National Heart and Lung Institute, Imperial College London and Royal Brompton Hospital, London, UK.
Cardiology Clinical Academic Group, St George's Hospitals NHS Trust University of London, London, UK.
Richard Midham, European Cardiac Society Patient Forum, Sophia Antipolis, France.
Emergency Institute for Cardiovascular Diseases 'C.C. Iliescu', and University of Medicine 'Carol Davila', Bucharest, Romania.
Department of Psychiatry, Social Psychiatry and Psychotherapy, Hannover Medical School, Hannover, Germany.
Cardiovascular Clinical Academic Group, Molecular and Clinical Research Institute, St George's University Hospital, UK and San Raffaele Cassino Hospital, Cassino, Italy.
Department of Cardiology (CVK), Berlin-Brandenburg Center for Regenerative Therapies (BCRT), German Centre for Cardiovascular Research (DZHK) Partner Site Berlin, Charité University, Berlin, Germany.
University Paris Cite, Department of Anaesthesiology and Critical Care Medicine, AP-HP, Saint Louis Lariboisière University Hospitals, University Paris Diderot, Paris, France.
University of Belgrade Faculty of Medicine and Heart Failure Center, Belgrade University Medical Center, Belgrade, Serbia.

This statement focuses on the fact that women with peripartum cardiomyopathy (PPCM) have a substantial mortality and morbidity rate. Less than 50% of patients have full recovery of their cardiac function within 6 months of diagnosis. Also, patients with recovered cardiac function often suffer from comorbidities, such as hypertension or arrhythmias, which require long-term treatment. This has major implications which extend beyond the life of the patient, as it may also substantially impact her family. Women with a new diagnosis of PPCM should be involved in the decision-making processes regarding therapies, e.g. the recommendation to abstain from breastfeeding, or the use of cardiac implantable electronic devices. Women living with PPCM face the uncertainty of not knowing for some time whether their cardiac function will recover to allow them a near-to-normal life expectancy. This not only impacts their ability to work, which may have financial implications, but may also affect mental health and quality of life for the extended family. Women living with PPCM must be informed that a future pregnancy always carries a substantial risk and, in case of poor cardiac recovery, is associated with a high morbidity and mortality. Patients with PPCM are best managed by an interdisciplinary and multiprofessional approach including e.g. a cardiologist, a gynaecologist, nurses, a psychologist, and social workers. The scope of this document encompasses contemporary challenges and approaches for the management of women diagnosed with PPCM.

中文翻译：

围产期心肌病患者的生活：来自心力衰竭协会和欧洲心脏病学会心血管护理和相关专业协会的声明

该声明侧重于围产期心肌病（PPCM）女性的死亡率和发病率很高的事实。不到 50% 的患者在诊断后 6 个月内心脏功能完全恢复。此外，心脏功能恢复的患者经常患有合并症，例如高血压或心律失常，需要长期治疗。这具有超出患者生命的重大影响，因为它也可能对她的家庭产生重大影响。新诊断为 PPCM 的女性应参与有关治疗的决策过程，例如建议避免母乳喂养或使用心脏植入式电子设备。患有 PPCM 的女性面临着不确定性，即在一段时间内不知道她们的心脏功能是否会恢复以使她们的预期寿命接近正常。这不仅会影响他们的工作能力，这可能会产生财务影响，还可能影响大家庭的心理健康和生活质量。必须告知患有 PPCM 的妇女，未来怀孕总是有很大的风险，并且在心脏恢复不良的情况下，与高发病率和死亡率相关。PPCM 患者最好通过跨学科和多专业的方法进行管理，包括例如心脏病专家、妇科医生、护士、心理学家和社会工作者。本文件的范围包括诊断为 PPCM 的女性管理的当代挑战和方法。

更新日期：2024-08-08

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