We provide here the first bottom‐up review of the lived experience of mental disorders in adolescents co‐designed, co‐conducted and co‐written by experts by experience and academics. We screened first‐person accounts within and outside the medical field, and discussed them in collaborative workshops involving numerous experts by experience – representing different genders, ethnic and cultural backgrounds, and continents – and their family members and carers. Subsequently, the material was enriched by phenomenologically informed perspectives and shared with all collaborators. The inner subjective experience of adolescents is described for mood disorders, psychotic disorders, attention‐deficit/hyperactivity disorder, autism spectrum disorders, anxiety disorders, eating disorders, externalizing disorders, and self‐harm behaviors. The recollection of individuals’ past histories also indexes the prodromal (often transdiagnostic) features predating the psychiatric diagnosis. The experience of adolescents with mental disorders in the wider society is described with respect to their family, their school and peers, and the social and cultural context. Furthermore, their lived experience of mental health care is described with respect to receiving a diagnosis of mental disorder, accessing mental health support, receiving psychopharmacological treatment, receiving psychotherapy, experiencing peer support and mental health activism, and achieving recovery. These findings can impact clinical practice, research, and the whole society. We hope that this co‐designed, co‐conducted and co‐written journey can help us maintain our commitment to protecting adolescents’ fragile mental health, and can help them develop into a healthy, fulfilling and contributing adult life.

中文翻译：

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青少年精神障碍的生活经历：由经验丰富的专家和学者共同设计、共同实施和共同撰写的自下而上的综述


我们在这里首次对青少年精神障碍的生活经历进行了自下而上的回顾，由经验丰富的专家和学者共同设计、共同实施和共同撰写。我们筛选了医学领域内外的第一人称叙述，并在由众多经验丰富的专家（代表不同性别、种族和文化背景以及大陆）及其家庭成员和护理人员参与的合作研讨会上进行了讨论。随后，这些材料通过现象学的视角得到了丰富，并与所有合作者分享。青少年的内在主观体验被描述为情绪障碍、精神病、注意力缺陷/多动障碍、自闭症谱系障碍、焦虑症、饮食障碍、外在障碍和自残行为。对个人过去病史的回忆也可以索引出精神病学诊断之前的前驱症状（通常是跨诊断的）特征。描述了更广泛社会中患有精神障碍的青少年的经历，包括他们的家庭、学校和同龄人以及社会和文化背景。此外，还描述了他们的心理健康护理生活经历，包括接受精神障碍的诊断、获得心理健康支持、接受精神药物治疗、接受心理治疗、经历同伴支持和心理健康活动以及实现康复。这些发现可能会影响临床实践、研究和整个社会。我们希望这个共同设计、共同实施和共同撰写的旅程能够帮助我们履行保护青少年脆弱心理健康的承诺，并帮助他们发展成为健康、充实和有贡献的成年生活。