The development of new genetic medicines to treat sickle cell disease highlights the need for greater collaboration between researchers and people with lived experiences. Drawing on the adage “Nothing about us, without us,” we call for increased investments in community advocacy and engagement.

中文翻译：

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没有我们就没有我们：基因医学的倡导和参与

治疗镰状细胞病的新基因药物的开发凸显了研究人员和有生活经验的人们之间加强合作的必要性。借鉴“没有我们，就没有我们的一切”这句格言，我们呼吁增加对社区宣传和参与的投资。