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Unmasking the Struggle: A Scoping Review Exploring Post-Traumatic Stress Symptoms in Caregivers of Individuals with Neurodevelopmental, Psychiatric and Neurocognitive Disorders
Trauma, Violence, & Abuse ( IF 5.4 ) Pub Date : 2024-04-27 , DOI: 10.1177/15248380241241018
Jan Mei Lim 1, 2 , Joanna Barlas 1 , Divjyot Kaur 1 , Pamela Ng 2
Affiliation  

The impact of caregiving on caregivers’ mental health is typically considered within the caregiver stress and burden literature; however, more recently, research has investigated the experience of post-traumatic stress symptoms (PTSS) in caregivers. As an emerging area of research, it is timely to conduct a scoping review to map the existing literature in relation to PTSS among adult caregivers of children and adults with neurodevelopmental disorders (NDD), neurocognitive disorders, and psychiatric disorders. The scoping review was conducted using Preferred Reporting Items of Systematic Reviews and Meta-Analyses Extension for Scoping Reviews guidelines and Arksey and O’Malley’s five-stage methodology framework. Published and unpublished gray literature between 2005 and 2022 was included in the scoping review. Nine thousand one hundred and twenty-five studies were originally identified for screening and 22 studies were selected for inclusion in the final review. Trauma and PTSS experienced by NDD caregivers were related to news breaking, NDD diagnosis, and behavioral issues, whereas caregivers of individuals with psychosis reported aggression and violence as traumatic events. Studies showed that up to half of caregivers reported PTSS, although no conclusions could be drawn about prevalence rates. A wide variety of tools measuring PTSS were used across the 22 studies. Many symptoms of PTSS were reported by caregivers, and cognitive appraisals were associated with PTSS in caregivers. The findings highlight the importance of recognizing the impact of trauma in caregiver mental health and the potential value of using traumatic stress frameworks with these populations. Research should be expanded to establish prevalence rates and to examine the long-term impact of trauma on caregiving as caregivers and care recipients age.

中文翻译:

揭开斗争的面纱:一项范围界定综述,探讨神经发育、精神和神经认知障碍患者的护理人员的创伤后应激症状

护理对护理人员心理健康的影响通常在护理人员压力和负担文献中予以考虑;然而,最近的研究调查了护理人员的创伤后应激症状(PTSS)经历。作为一个新兴的研究领域,现在是时候进行范围界定审查,以绘制患有神经发育障碍(NDD)、神经认知障碍和精神疾病的儿童和成人的成人护理人员中与 PTSS 相关的现有文献。范围界定审查是使用系统评价的首选报告项目和范围界定审查指南的荟萃分析扩展以及 Arksey 和 O'Malley 的五阶段方法框架进行的。范围界定审查中纳入了 2005 年至 2022 年已发表和未发表的灰色文献。最初确定了 9125 项研究进行筛选,并选择了 22 项研究纳入最终审查。 NDD 护理人员经历的创伤和 PTSS 与新闻报道、NDD 诊断和行为问题有关,而精神病患者的护理人员将攻击和暴力报告为创伤事件。研究表明,尽管无法得出关于患病率的结论,但多达一半的护理人员报告有 PTSS。 22 项研究使用了多种测量 PTSS 的工具。护理人员报告了 PTSS 的许多症状,并且护理人员的认知评估与 PTSS 相关。研究结果强调了认识创伤对护理人员心理健康影响的重要性以及对这些人群使用创伤应激框架的潜在价值。应扩大研究范围,以确定患病率,并检查随着护理人员和护理接受者年龄的增长,创伤对护理的长期影响。
更新日期:2024-04-27
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