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Exploring quality of life in postural orthostatic tachycardia syndrome: A conceptual analysis
Autonomic Neuroscience ( IF 3.2 ) Pub Date : 2024-02-12 , DOI: 10.1016/j.autneu.2024.103157
William S Frye 1 , Brooke Greenberg 2
Affiliation  

Postural Orthostatic Tachycardia Syndrome (POTS) is a complex autonomic disorder characterized by an abnormal increase in heart rate upon orthostatic change. While primarily described in its effect on the autonomic and cardiovascular system, it can cause significant functional impairment, leading to a diminished quality of life (QoL). This review paper aims to delve into the multifaceted dimensions of QoL in individuals with POTS by providing a conceptual model to discuss factors influencing QoL. Current QoL assessments used in the POTS population and their findings are described for each domain in this conceptual model. Limitations to this body of research include the literature having no consensus in the most appropriate measure of QoL to use for individuals with POTS, the absence of a POTS-specific measure of QoL, and current measures not assessing concerns germane to this population. The authors emphasize the necessity of a POTS-specific measure to be developed to improve our assessment and understanding of how living with POTS impacts QoL.

中文翻译:


探索体位性心动过速综合征的生活质量:概念分析



姿势性直立性心动过速综合征 (POTS) 是一种复杂的自主神经疾病,其特征是直立性改变时心率异常增加。虽然主要描述的是它对自主神经和心血管系统的影响,但它可能会导致严重的功能障碍,导致生活质量 (QoL) 下降。本文旨在通过提供概念模型来讨论影响生活质量的因素,深入研究 POTS 患者生活质量的多方面维度。该概念模型中的每个领域都描述了 POTS 人群中当前使用的生活质量评估及其结果。本研究的局限性包括文献对于用于 POTS 个体的最合适的生活质量衡量标准尚未达成共识,缺乏针对 POTS 的特定生活质量衡量标准,以及当前的衡量标准未评估与该人群密切相关的问题。作者强调有必要制定针对 POTS 的衡量标准,以改善我们对 POTS 生活如何影响生活质量的评估和理解。
更新日期:2024-02-12
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