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Psychological and social impacts on carers of children with a gastrostomy: a systematic review
Pediatric Surgery International ( IF 1.5 ) Pub Date : 2024-01-31 , DOI: 10.1007/s00383-023-05618-4
Joe Prakash 1 , Caroline Pardy 2 , Iain Yardley 1, 2 , Veronica Kelly 3
Affiliation  

To determine the psychological and social impacts of a gastrostomy in childhood on carers and families. A systematic search of OVID, Medline and Embase was undertaken using the subject headings and word variants for ‘gastrostomy’, ‘children’ and ‘carers’. Studies included were those describing the impact of gastrostomies in children on family and carers, published in English. 564 articles were identified. After exclusion of duplicates, abstract and full text screening, 25 were included. Carer anxiety increases in the period leading up to, and for a short period following gastrostomy insertion. 3–6 months following gastrostomy insertion, anxiety reduced (reduced State–Trait Anxiety Inventory scores), carer quality of life improved (higher Quality of Life Scale scores), and carer satisfaction with the child’s gastrostomy increased (improved Satisfaction Questionnaire with Gastrostomy Feeding scores). Reported changes in carer quality of life in the longer term following a child’s gastrostomy insertion were mixed. The social and psychological burden on caregivers of a gastrostomy in childhood varies over time. There is evidence that paediatric gastrostomies have positive effects on carers’ psychological and social well-being; however, aspects of carers’ quality of life remain impaired. Carer education and support are vital to reduce the burden placed on carers.



中文翻译:


对胃造口术儿童照顾者的心理和社会影响:系统评价



确定儿童期胃造瘘术对照顾者和家庭的心理和社会影响。使用 'gastrostomy'、'children' 和 'carers' 的主题词和单词变体对 OVID、Medline 和 Embase 进行系统检索。纳入的研究是那些描述儿童胃造口术对家庭和照顾者影响的研究,以英文发表。确定了 564 篇文章。在排除重复项、摘要和全文筛选后,共纳入 25 篇。照顾者焦虑在胃造口插入前和胃造口插入后的短时间内增加。胃造口插入后 3-6 个月,焦虑减轻(状态-特质焦虑量表评分降低),照顾者生活质量改善(生活质量量表评分更高),照顾者对儿童胃造口术的满意度增加(改善满意度问卷与胃造口喂养评分)。据报道,儿童胃造口插入术后照护者生活质量的长期变化喜忧参半。儿童期胃造口术照料者的社会和心理负担随时间而变化。有证据表明,儿科胃造口术对照顾者的心理和社会福祉有积极影响;然而,照顾者的生活质量方面仍然受损。照顾者教育和支持对于减轻照顾者的负担至关重要。

更新日期:2024-01-31
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