Capturing the Range of Disease Involvement in Localized Scleroderma: The Localized Scleroderma Total Severity Scale,Arthritis Care & Research

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Capturing the Range of Disease Involvement in Localized Scleroderma: The Localized Scleroderma Total Severity Scale
Arthritis Care & Research ( IF 3.7 ) Pub Date : 2023-12-26 , DOI: 10.1002/acr.25281
Suzanne C Li ₁ , C Egla Rabinovich ₂ , Mara L Becker ₂ , Kathryn S Torok ₃ , Polly J Ferguson ₄ , Fatma Dedeoglu ₅ , Sandy Hong ₆ , Vidya Sivaraman ₇ , Ronald M Laxer ₈ , Katie Stewart ₉ , Maria F Ibarra ₁₀ , Thomas Mason ₁₁ , Gloria Higgins ₇ , Elena Pope ₈ , Xiaohu Li ₁₂ , Tara Lozy ₁₃ , Robert C Fuhlbrigge ₁₄ ,

Affiliation

Joseph M. Sanzari Children's Hospital, Hackensack, and Hackensack Meridian School of Medicine, Nutley, New Jersey.
Duke University School of Medicine, Durham, North Carolina.
University of Pittsburgh, Pittsburgh, Pennsylvania.
University of Iowa Carver College of Medicine, Iowa City.
Boston Children's Hospital, Boston, Massachusetts.
University of Iowa Stead Family Children's Hospital, Iowa City, Iowa.
The Ohio State University and Nationwide Children's Hospital, Columbus, Ohio.
Temerty Faculty of Medicine, University of Toronto, and The Hospital for Sick Children, Toronto, Ontario, Canada.
Texas Children's Hospital and Baylor College of Medicine, Austin, Texas.
Children's Mercy Hospital, Kansas City, Missouri.
Mayo Clinic, Rochester, Minnesota.
Stevens Institute of Technology, Hoboken, New Jersey.
Center for Discovery and Innovation, Hackensack Meridian Health, Nutley, New Jersey.
University of Colorado and Colorado Children's Hospital, Aurora.

Juvenile localized scleroderma (jLS) is a chronic autoimmune disease commonly associated with poor outcomes, including contractures, hemiatrophy, uveitis, and seizures. Despite improvements in treatment, >25% of patients with jLS have functional impairment. To improve patient evaluation, our workgroup developed the Localized scleroderma Total Severity Scale (LoTSS), an overall disease severity measure.

中文翻译：

捕捉局限性硬皮病的疾病受累范围：局部硬皮病总严重程度量表

幼年局限性硬皮病（jLS）是一种慢性自身免疫性疾病，通常与不良结局相关，包括挛缩、偏血、葡萄膜炎和癫痫发作。尽管治疗有所改善，但 >25% 的 jLS 患者存在功能障碍。为了改善患者评估，我们的工作组开发了局部硬皮病总严重程度量表（LoTSS），这是一种整体疾病严重程度测量方法。

更新日期：2023-12-26

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