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What I never consented to
The BMJ ( IF 93.6 ) Pub Date : 2021-06-24 , DOI: 10.1136/bmj.n1294 Andrés J Lessing
The BMJ ( IF 93.6 ) Pub Date : 2021-06-24 , DOI: 10.1136/bmj.n1294 Andrés J Lessing
Andrés J Lessing describes the worry of incidental findings and how the process of giving consent could be improved I have a complex medical history and have experienced many tests, procedures, and surgeries. Over the years, I have consented to seemingly endless risks that came with these procedures, including adverse reactions, infection, bleeding, nerve damage, function loss, and even death. But one element was never included in consent forms or conversations—the possibility of an incidental finding. I have never consented to what I now know is common and called “incidentaloma.” I am 41 and have neurofibromatosis type 1 (NF). I have survived NF related cancers three times and participated in multiple investigational studies along the way. These included myriad magnetic resonance imaging (MRI) and computed tomography (CT) scans and surgeries. Some of the scans showed lesions that were unexpected, and these prompted …
中文翻译:
我从未同意的
Andrés J Lessing 描述了对偶然发现的担忧以及如何改进给予同意的过程。我有复杂的病史,经历了许多测试、程序和手术。多年来,我同意这些手术带来的看似无穷无尽的风险,包括不良反应、感染、出血、神经损伤、功能丧失,甚至死亡。但是,同意书或对话中从未包含一个要素——偶然发现的可能性。我从来没有同意我现在知道的很常见并被称为“偶发瘤”。我 41 岁,患有 1 型神经纤维瘤病 (NF)。我已经三次从 NF 相关癌症中幸存下来,并在此过程中参与了多项调查研究。这些包括无数的磁共振成像 (MRI) 和计算机断层扫描 (CT) 扫描和手术。
更新日期:2021-06-24
中文翻译:
我从未同意的
Andrés J Lessing 描述了对偶然发现的担忧以及如何改进给予同意的过程。我有复杂的病史,经历了许多测试、程序和手术。多年来,我同意这些手术带来的看似无穷无尽的风险,包括不良反应、感染、出血、神经损伤、功能丧失,甚至死亡。但是,同意书或对话中从未包含一个要素——偶然发现的可能性。我从来没有同意我现在知道的很常见并被称为“偶发瘤”。我 41 岁,患有 1 型神经纤维瘤病 (NF)。我已经三次从 NF 相关癌症中幸存下来,并在此过程中参与了多项调查研究。这些包括无数的磁共振成像 (MRI) 和计算机断层扫描 (CT) 扫描和手术。