制定和评估中晚期癌症患者家庭护理人员的英文和中文生活质量测量量表。,Health and Quality of Life Outcomes

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制定和评估中晚期癌症患者家庭护理人员的英文和中文生活质量测量量表。
Health and Quality of Life Outcomes ( IF 3.2 ) Pub Date : 2019-02-16 , DOI: 10.1186/s12955-019-1108-y
Yin Bun Cheung _{1,

2} , Shirlyn H S Neo ₃ , Irene Teo _{4,

5} , Grace M Yang _{3,

4} , Geok Ling Lee ₆ , Julian Thumboo ₇ , John W K Chia ₈ , Audrey R X Koh ₃ , Debra L M Qu ₃ , William W L Che ₉ , Annie Lau ₁₀ , Hwee Lin Wee _{11,

12}

Affiliation

Program in Health Services & Systems Research and Centre for Quantitative Medicine, Duke-NUS Medical School, Singapore, Singapore.
Centre for Child Health Research, University of Tampere and Tampere University Hospital, Tampere, Finland.
Division of Supportive and Palliative Care, National Cancer Center, Singapore, Singapore.
Lien Center for Palliative Care, Duke-NUS Medical School, Singapore, Singapore.
Division of Psychosocial Oncology, National Cancer Center, Singapore, Singapore.
Department of Social Work, Faculty of Arts and Social Sciences, National University of Singapore, Singapore, Singapore.
Department of Rheumatology and Immunology, Singapore General Hospital, Singapore, Singapore.
Department of Medical Oncology, National Cancer Center, Singapore, Singapore.
School of Translation, Hang Seng Management College, Hong Kong, China.
Department of Nursing, Singapore General Hospital, Singapore, Singapore.
Department of Pharmacy, Faculty of Science, National University of Singapore, Singapore, Singapore.
Saw Swee Hock School of Public Health, National University of Singapore, Singapore, Singapore.

背景技术晚期癌症患者的家庭护理人员的生活质量是肿瘤护理中的重要问题。然而，在亚洲几乎没有合适的测量尺。这项研究旨在开发和评估以英语和中文本地发布的测量量表，以评估新加坡晚期癌症患者的家庭护理人员的生活质量。方法：量表内容是从定性研究中得出的，该研究从家庭看护人那里征求了意见。招募了612位晚期癌症患者的家庭看护人，其中304位和308位分别选择了英语和中文版本的生活质量量表。进行了一项后续调查，以进行重测信度评估。分析开始于汇总所有观察值，其次是按语言样本和种族群体（在讲英语的参与者中）进行分层的分析。结果因子分析确定了生活质量的5个领域。近似均方根误差为0.041，比较拟合指数为0.948。通过与护理者简要评估量表及其子量表和财务关注程度的相关性，证明了总分和领域分的收敛和分歧有效性。已知组的有效性通过患者表现状态定义的组间差异来证明。内部和整体分数（领域分数）的一致性（Cronbach的Alpha）范围从0.86到0.93。重测信度（类内相关系数）在0.74至0.89之间。分别对讲英语和汉语的样本以及不同种族进行的分析得出相似的结果。结论根据家庭看护者的意见，现已开发出一种新的，经过验证的，多领域的，针对晚期癌症患者的看护者的生活质量测量量表，目前有两种语言可供选择。我们称其为新加坡照顾者生活质量量表（SCQOLS）。

"点击查看英文标题和摘要"

Development and evaluation of a quality of life measurement scale in English and Chinese for family caregivers of patients with advanced cancers.

BACKGROUND The quality of life of family caregivers of patients with advanced cancers is an important concern in oncology care. Yet, there are few suitable measurement scales available for use in Asia. This study aims to develop and evaluate a locally derived measurement scale in English and Chinese to assess the quality of life of family caregivers of patients with advanced cancers in Singapore. METHODS Scale contents were generated from qualitative research that solicited inputs from family caregivers. Six hundred and twelve family caregivers of patients with advanced cancers were recruited, of whom 304 and 308 chose to complete the English and Chinese versions of the quality of life scale, respectively. A follow-up survey was conducted for test-retest reliability assessment. Analyses began with pooling all observations, followed by analyses stratified by language samples and ethnic groups (among English-speaking participants). RESULTS Factor analysis identified 5 domains of quality of life. The Root Mean Square Error of Approximation was 0.041 and Comparative Fit Index was 0.948. Convergent and divergent validity of the total and domain scores were demonstrated in terms of correlation with the Brief Assessment Scale for Caregiver and its sub-scales and a measure of financial concern; known-group validity was demonstrated in terms of differences between groups defined by patient's performance status. Internal consistency (Cronbach's alpha) of the total and domain scores ranged from 0.86 to 0.93. Test-retest reliability (intraclass correlation coefficient) ranged from 0.74 to 0.89. Separate analyses of the English- and Chinese-speaking samples and ethnic groups gave similar results. CONCLUSION A new, validated, multi-domain quality of life measurement scale for caregivers of patients with advanced cancers that is developed with inputs from family caregivers is now available in two languages. We call this the Singapore Caregiver Quality Of Life Scale (SCQOLS).

更新日期：2019-02-14

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