AimsTo analyse how adolescents and young adults who survived childhood cancer experience their quality of life and to explore their meanings and conceptualisations of quality of life.DesignNarrative design following Squire's method.MethodsIn‐person and virtual recruitment, due to the global COVID‐19 pandemic, was carried out in Brazil between May and November 2021. Eighteen semi‐structured virtual interviews were conducted with childhood cancer survivors. These data were analysed using reflexive thematic analysis and employing a triangulation of investigators.ResultsFour subthemes were identified, encompassing participants' perceptions and meanings of quality of life. Through the reflection and synthesis of these subthemes, a central theme emerged entitled ‘New self’, capturing the profound impact of the cancer and survival experience on every aspect of the self, along with participants' sense of having gained ‘a new life’ and a ‘second chance’.ConclusionThe study provides a rich and nuanced understanding of quality of life for childhood cancer survivors. The results highlight that after all the changes in life due to cancer, integrating the new self becomes a central aspect of quality of life for survivors.Implications for the Profession and/or Patient CareRecognising the profound shifts in self‐perception that survivors of childhood cancer undergo, nurses should engage early in empowering patients and families, offering education, space and support to help adolescents and young adults grow throughout their journey.ImpactThe richness and depth inherent in qualitative data on quality of life can inform the development of care standards and health policies for survivors, guide the allocation of strategic resources and shape the development of plans and interventions focusing on childhood cancer survivors.Reporting MethodThe COREQ checklist was used.Patient or PublicNo patient or public contribution.

中文翻译：

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儿童癌症青少年和年轻成年幸存者的生活质量：一项定性研究


目的分析儿童癌症幸存者如何体验他们的生活质量，并探讨他们对生活质量的意义和概念化。设计遵循 Squire 方法的叙事设计。方法由于全球 COVID-19 大流行，于 2021 年 5 月至 11 月在巴西进行了面对面和虚拟招聘。对儿童癌症幸存者进行了 18 次半结构化虚拟访谈。这些数据使用反射性主题分析并采用研究人员的三角测量进行分析。结果确定了四个子主题，包括参与者对生活质量的看法和意义。通过对这些子主题的反思和综合，出现了一个名为“新自我”的中心主题，捕捉了癌症和生存经历对自我各个方面的深刻影响，以及参与者获得“新生活”和“第二次机会”的感觉。结论该研究提供了对儿童癌症幸存者生活质量的丰富而细致的理解。结果强调，在癌症导致生活发生所有变化之后，整合新自我成为幸存者生活质量的核心方面。对专业和/或患者护理的影响认识到儿童癌症幸存者自我认知的深刻转变，护士应尽早参与赋予患者和家庭权力，提供教育、空间和支持，以帮助青少年和年轻人在整个旅程中成长。影响生活质量定性数据所固有的丰富性和深度可以为幸存者护理标准和健康政策的制定提供信息，指导战略资源的分配，并影响以儿童癌症幸存者为重点的计划和干预措施的制定。报告方法使用了 COREQ 清单。患者或公众没有患者或公众贡献。