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Understanding what it is like to experience pain as you grow up: a poetic meta-ethnography.
Pain ( IF 5.9 ) Pub Date : 2024-10-18 , DOI: 10.1097/j.pain.0000000000003420
Francine Toye,Erin Hannink,Amy Woolverton,Karen L Barker

A recent Lancet Commission raised concerns about the management of child and adolescent pain. We aimed to undertake a comprehensive review of qualitative research to understand children and adolescent pain experiences across contexts. We used the 7 stages of meta-ethnography to synthesise findings. We combined the strengths of arts-based methods, translating themes into poems in a range of languages. We screened 7471 titles, 464 abstracts, and 302 full texts, including 189 reports (177 unique samples) incorporating 5875 young people. Age range across studies was 2 to 38 years, with 93% including those between the age of 11 and 20 years old. Studies spanned 30 years (1993-2023) with 121 (64%) published in the last 10 years. Almost all (93%) were set-in high-income countries. We report 6 themes focusing on transition to adulthood: (1) I want to stay within the safety of home; (2) don't exclude me from my own care; (3) it might hurt but it's for my own good; (4) I rely on others but I want some independence; (5) I am no longer a child but I am not an adult yet; and (6) I wasn't prepared for the transfer to adult health care. Our findings focus on the complex transition into adulthood and the importance of creating a genuine healthcare partnership with young people by acknowledging their perspectives, creating a safe and supportive environment, and preparing them for the transition to adult pain care. Arts-based methods have the potential to make findings from qualitative evidence syntheses accessible and impactful for compassionate health care.

中文翻译:


了解在成长过程中经历痛苦是什么感觉:诗意的元民族志。



最近的一个柳叶刀委员会对儿童和青少年疼痛的管理提出了担忧。我们旨在对定性研究进行全面审查,以了解不同背景下的儿童和青少年疼痛经历。我们使用元民族志的 7 个阶段来综合研究结果。我们结合了基于艺术的方法的优势,将主题翻译成多种语言的诗歌。我们筛选了 7471 篇标题、464 篇摘要和 302 篇全文,包括 189 份报告(177 个独特样本),涉及 5875 名年轻人。研究的年龄范围为 2 至 38 岁,其中 93% 包括 11 至 20 岁的人群。研究跨越 30 年(1993-2023 年),其中 121 项 (64%) 发表在过去 10 年中。几乎所有 (93%) 都位于高收入国家。我们报告了 6 个主题,重点关注向成年的过渡:(1) 我想待在安全的家中;(2) 不要把我排除在自己的照顾之外;(3) 这可能会受伤,但这是为了我自己好;(4) 我依赖他人,但我想获得一些独立性;(5) 我不再是孩子,但还不是成年人;(6) 我没有为转移到成人医疗保健做好准备。我们的研究结果侧重于向成年的复杂过渡,以及通过承认年轻人的观点、创造安全和支持性的环境以及为他们过渡到成人疼痛护理做好准备来与年轻人建立真正的医疗保健伙伴关系的重要性。基于艺术的方法有可能使定性证据综合的结果变得可访问并对富有同情心的医疗保健产生影响。
更新日期:2024-10-18
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